My IC Story

Every IC warrior has a story. And this is mine…

It was Fall 2014, I was 28 years old and I had just begun my first semester at Gallaudet University in Washington DC. It was a very exciting time. But I got sick with bronchitis which was nothing new since I have had chronic bronchitis my whole life. Even on my three inhalers, antibiotics, cough syrup with codeine and steroids, I persevered and went to school (I wasn’t contagious). And then when I was finally feeling better in early October 2014, my dad died. I won’t go into great detail here, but he had been sick for many years and it was a huge shock. And I got sick with bronchitis again. His death was incredibly stressful for my family and it took its toll on us. One month after he died, my dog died unexpectedly. She was 15 but still unexpected. In the course of one month, I lost two of the most important people in my life. And it got worse. The ‘relationship’ I was in which wasn’t that great, to begin with quickly deteriorated because he couldn’t understand why I was sad all the time. He wanted me to just bounce back and be myself. So I stopped talking to him completely. And then my best friend at the time couldn’t handle my stuff so she disappeared from my life. I didn’t have time to dwell on the fact that my relationship and friendship were over because I was too busy trying to mourn my losses, all the while still in school. I came out of that semester with a 4.0 GPA.  No matter what happens…I am determined to succeed. But that’s just the beginning of mys story.

The new year came and went, I was in a foggy haze. Still trying to figure out what all just happened. I hadn’t been taking care of myself. In February, I thought I had a Urinary Tract Infection (UTI) so I chugged some cranberry juice and kept going on with life. But it didn’t get better so finally in March I took the time to go to the doctor for a UTI test. They tested me, gave me antibiotics and it was negative. I went back a week later, still in pain. Test again. Antibiotics again. Negative again. They did some exams and tests on me but couldn’t figure out why I was still in pain. They sent me to a urologist. Luckily, I went to a doctor who was familiar with IC. Many people with IC are misdiagnosed for years before they find a doctor who can correctly diagnosis them.

To be continued…

Daily medication list

Seasonale birth control

Nortriptyline 10mg/3x a day

Welbutrin 300xl

Oxybutynin 5mg

Seroquel 1/2-1 tab

Topiramate 25mg

As needed:

Tramadol

Baclofen (muscle relaxer)

Ibuprofen/Tylenol

Sumatriptan

Daily supplements:

Super colostrum

low acid multi vitamins – multi right

Ester-C 1,000mg (Vitamin C)

D-Mannose 500mg (prevents UTI and other infection)

Aloe vera

As needed:

Prelief

tums


For more information on IC (doctors, diagnosis, treatment, advocacy and more) please go to the Interstitial Cystitis Associaton’s website at www.ichelp.org and the ICNetwork’s website at http://www.ic-network.com/