Why A Life Less Invisible?

After a lot of brainstorming over the name of this blog, I landed on A Life Less Invisible, because I am trying to make my invisible chronic illnesses less invisible. I want more people to be aware of them. Not just for my sake, but for everybody’s sake. Too many people suffer silently with invisible chronic illness and they do so because of stigma. The stigma of a chronic illness that can’t be seen is overwhelming and isolating. We don’t have to allow people to stigmatize us into hiding our illness.

I refuse to be invisible anymore.

Our society is coming undone. More 20 and 30-somethings have chronic illnesses than ever before… it is not a coincidence. We are doing this to ourselves. And only we can undo this to ourselves. The first step is: self-care

My first step into self-care was starting this blog.  I started this blog as a safe place and a coping mechanism for all the drastic changes related to my health that are happening in my life right now. Usually, I prefer to keep a written journal, but now I am in grad school so I don’t have a lot of spare time to keep a journal. I thought I would keep a private blog because I am actually a very private person. But then I thought that maybe if I tell my story that it could help other people who have IC, migraines or other chronic illness…and then making it public would be worthwhile. So please feel free to leave a comment, send me a message or email me. I would love to hear from you. How is your IC/Chronic illness journey? Does my blog resonate with you?

-Rachel Bob

 

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