Hey there. You might be here because you are someone that knows me and cares about me and wants to check in on how I am doing. Or you might be someone who knows IC and/or migraines/other chronic illness(personally or through a loved one) and you’re not a fan of it (which is understandable) or are trying to understand it…either way, I’m glad you could stop by. If you want to start at the beginning of my blog at any point in time, maybe because you want to see how my journey began or you want to torture yourself for some reason, you can click here or you can click “To start at the beginning” at the top of my blog.
And if you don’t know about me…maybe learn more about me below:
-I am Rachel Bob.
-I am a cat mom to four amazing cats: Blinken, Stanley, Marzipan, and Ziggy.
-In a relationship with Aaron.
-Stepmom to Reid.
-I love unicorns, narwhals, llamas, llamacorns and polka dots.
-I’m a Jew..and yes, it matters, because as I always say Jews of a feather flock together.
-I laugh at my own jokes.
-I am a Highly Sensitive Person (HSP), which is an innate genetic temperament trait.
-I’m extremely introverted. But I love people. I prefer one on one time to group time.
-I graduated with my BA in Deaf Studies from Gallaudet University in May 2016.
-I am in grad school at Gallaudet University in DC to become a social worker because social justice runs through my veins.
-Glitter also runs through my veins.
-You might see me talking a lot about the Deaf community and the DeafBlind community. I am not Deaf, my grandparents were Deaf, which makes me a Grandchild of Deaf Adult (GODA) and my mom is a Child of Deaf Adult (CODA). Gallaudet is the only Deaf liberal arts university in the world and it is my home. Yes, that means I use American Sign Language fluently, I have been signing since I was born.
-If you read my blog you will see that I have recently resigned my positions in the DeafBlind community. Working with DeafBlind people is my passion. Yes, like Helen Keller, but she’s old news. It’s more like Haben Girma, the first DeafBlind Harvard Law school graduate. DeafBlindness is not just one thing. Just like there’s a range of being deaf, you can be hard of hearing, completely deaf or somewhere in between. Same with being blind, you can have low vision, close vision. DeafBlindness really varies from person to person: Tactile ASL (Signing in their hands), close vision, tracking (they place their hands on the signer’s wrists to follow them) and more. Working with DeafBlind people is what I love to do. Unfortunately, my health will no longer allow it. It is very physically, mentally and emotionally strenuous on the body which is one of the reasons I loved it so much…I love a challenge. This has been my life for years and now …it’s not 😦
-But I am trying to find new passions to help me through this difficult time… I have a passion for the prison system (it’s that social justice running through my veins that I mentioned before), specifically focusing on juveniles in the adult prison system and Deaf prisoners. I volunteer for an organization called Helping Educate to Advance the Rights of the Deaf (HEARD), which primarily focuses on correcting and preventing deaf wrongful convictions, ending deaf prisoner abuse, decreasing recidivism rates for deaf returned citizens, and increasing representation of the deaf in the justice, legal and corrections professions.
-Oh yea…and I have Interstitial Cystitis, chronic migraines, pelvic floor dysfunction, asthma, chronic bronchitis and clinical depression. But that’s not who I am… I have to remind myself of that often.