I know it has been forever. Let me just tell you, grad school and chronic illnesses are kicking my butt…along with some other stuff, that I will surely get into soon. I barely have time to eat and sleep, let alone keep up with a blog. But the good news is I am officially on summer break and I am back at it!
I am back on this journey with you all. I have recently had a (strange) spike in my readership, which is odd considering I haven’t posted anything as of late. But that is encouraging because I love knowing that there is interest here…a community of people who want to read my insights, my life, my journey, my nonsensical ramblings and so on. It’s pretty freaking heartwarming.
Okay, let’s get down to business..the real reason why you all are here…because you obviously came for my great sense of humor… or you want to hear the 411..the dealio, the dilly…the..yea I got nothing else.
I want to say my health has been stable, plateaued or at the very least not gotten worse. But that would be a lie. I have since stopped physical therapy for my pelvic floor dysfunction (PFD), that has improved quite a bit! Which is always nice to say that I can basically go to the bathroom with ease almost anytime, except for when I am really stressed and my pelvic floor muscles contract and I just can’t pee for the life of me.
Starting back in September 2017 my throat starts hurting, not just a normal aching throat or a strep throat but a very specific spot in my throat with a very specific piercing kind of pain. Unfortunately, during that time, I was … busy. Focusing on other health issues that were more predominant at the time and grad school of course. As a busy grad student I felt like I could only focus on one health issue at a time but at some point, I went to my primary care doctor and mentioned it to her and she did a strep test and it came back positive for strep type B. She gave me antibiotics after we got the results back because by that time I had already been on antibiotics for one reason or another (i.e. bladder infections, kidney infections, UTIs, bronchitis and so on) for about 7 months at that point. But hey what’s one more round of antibiotics to kill off some strep RIGHT?!??!?! HAH. If only…
It’s a longgg story that I will save probably for either my next post or next’s week’s post. But for right now I will just say that my throat that started as strep has morphed into many things over the months and I’m on about my 9th round of antibiotics for my throat, no joke. So I’ve now been on antibiotics for a little over a year…which as we all know is great for your body. /sarcasm. But finally, my throat has been lowering in pain levels, at a slow but steady pace…more story on that soon.
While I have not been around to blog my life away, I have been deep in the experiences of my life and let me tell you, it’s been rough. There have been new challenges that pop up every single day. New challenges that are only complicated by my chronic illnesses. And isn’t that the thing about having a chronic illness? Healthy people with no disabilities, chronic illnesses, and/or mental health issues (however few of them there might be) just don’t realize how good they got it. They have “regular” life worries to get through. But for those of us who have that extra bit to struggle with…it just makes life that much more of a challenge.
- When will the next migraine pop up?/when will this migraine go away?
- Where will I find the nearest bathroom approximately every 30-45min?
- Will I be able to follow through on plans with family/friends because of *insert illness here*?
- Will I be on antibiotics forever? Can I sustain myself this way???
- Will my throat hurt forever? Will I be able to eat solid foods again?
- How will I live my best life knowing that even on my best day I am still in pain?
These are just some of the questions I have to ask myself on a regular basis. It has become ingrained in me that this is my life now and it’s hard, not just for me but the people in my life as well. I think sometimes the people in my life, like my boyfriend Aaron, get overwhelmed and forget that chronic illnesses, like mine, don’t just go away. Every once in awhile he gets frustrated at my migraines or some other symptom that I have. And maybe he thinks I’m using it as an excuse…I wishhhhh. When I have a migraine for days on end I wish I was making it up because that would mean I could be having a good day somewhere in there. Or maybe my throat hasn’t been hurting since September 2017 because that doesn’t happen to real people, right? Can’t make this stuff up when you these invisible chronic illnesses that impact your whole body.
Anyways, I’ll leave it here for now.
Upcoming blog post topics to look forward to from me will be (not necessarily in this order):
- Strep throat/E Coli in the throat or something else..wtf???
- Going back to work after about a year and 5 months of not working (outside of going to grad school full time)
- Being in a relationship with multiple chronic illnesses after 2.5 years
- A letter to my IC update – 1 year later
- A life without birth control update – 1 year later
- Just how many medications do chronically ill people take??