I just spent the last three days in DC. And the last day and a half I was holed up in Aaron’s (my boyfriend) apartment unable to leave because of the inauguration. So many roads were blocked off it was nearly impossible to get out. The March on Washington DC (and sister marches being held in other places) is happening now. So this morning I went home.
I left DC when the march happened. Why? I wanted to go to the march…very much so. I had been contemplating going to it for weeks. I talked to friends about it. My friend, Shelby and I made tentative but unrealistic plans to go. Neither of us went. My mom wanted to go too. How amazing it would have been if I could have gone with my mom and stand there with all those women for a purpose? That would have been amazing. But we didn’t go. Why?
Accessibility is a privilege that not everyone always has the benefit of having. Everyone has certain privileges. But today I want to talk about the privilege of being able to march and protest. All you have to do is pull up the live feed to see how many people are there, how much standing you have to do and how cold it is. It also makes me wonder how many bathrooms are around since I have IC and need a bathroom a frequently. I have back, leg and bladder pain which means I need to sit down a lot. And it’s very noisy and loud there which for me is a huge migraine trigger.
Just think about your triggers and what gives you a flare. Is it loud crowded places? Or standing for long periods of time? Is it walking for miles on end? Is it the stress of being in such an emotionally turbulent environment? It can be a plethora of things that set a flare off. We are all different. We don’t have the physical stamina or the ability to go for whatever health reason. But we have this in common…we are unable to go.
And now I sit here in my pajamas with my cat, Stanley, and I wonder…how many women wanted to go to the march but were unable to attend because of a chronic illness, disability or other health issues? How many men wanted to go to support the women they love but were unable to go because of chronic illness, disability or other health issues. Isn’t that sad? Chronic illness strikes again.
Feeling left out is a terrible feeling. I feel left out all the time because of my chronic illness. I have to conserve my energy all the time so I can’t do things. And I’m on a restricted diet so I can’t eat things that my friends eat. Those of us who live our lives with a chronic illness know how frustrating it can be…feeling left out. And feeling left out of the march is no different.
Disability issues…chronic illness issues…these are women’s issues too. Any issue that is important to us…that is a women’s issue
But as it turns out there is a virtual march to make the march more accessible to people with disabilities. We don’t have to be left out or left behind. We have a right to be involved. And the internet is the perfect way for us to do so. Now is the time for us to be loud and make ourselves heard. Now is the time for change because change is coming. Change is inevitable at this moment and we need to stand strong together as a community to make sure we have the changes we want and need. So be active and be involved.
Please don’t forget to be kind to yourself. Rest. Take your meds. Take a nap. Don’t allow the day’s events to stress you out too much. But I hope that everyone takes time today to watch the live feed on facebook, pull it up their twitter feed or just google it. Participate and get involved.